|James playing at the RDS booth|
It has been brought up to me that this research may lead to "getting rid" of Down syndrome. Personally I think we're a ways off of that with the new research. I think prenatal testing is doing a much better job of getting rid of Ds than turning off a chromosome is doing. But who am I to really say. I love my little guy with two or three 21st chromosomes. He's James. He's not Down syndrome. He's not a cause, not a disease, not a syndrome. He's James! He's James who needs a little extra time to learn things, needs a little extra help breathing, a little extra help from doctors and therapists. But he'll get there with everything...I keep reminding myself of this. I want him to live a life just like any other little boy out there, playing in the mud, bringing home worms and in general bringing utter chaos to our home. If there's a drug that comes out that will help him do all these things, be more independent, learn and communicate better that's pretty frickin' amazing!
|My chigger bites!|
So this week I ran with a bit more in my heart. Having NDSC in Denver this week I was reminded on every run why I am doing this. Why I'm running this crazy Leadville 100 mile run. One step at a time I will make it through each of those 100 miles. And one step at a time we'll get closer to some therapies that will make a difference in James life.
Week July 15 - 21
Miles Running: 47.0
Hours Running and Hiking: 9